More than 400,000 people worldwide have Usher Syndrome, a genetic condition that robs them of their vision and hearing.
Let's change that.

Alone we can do so little; together we can do so much.

-Helen Keller


We are starting a Dance Revolution ... because you don't need vision or hearing to dance. Help raise awareness and funds for Usher Syndrome research.

Help Us By Joining The Virtual Party!!

Keep scrolling below for the three ways you can help us make a difference.


Nobody cares if you can't dance well. Just get up and dance.

- Dave Barry


1. Make An AWESOME
Dance Video

Be yourself!  You don't need to have sight or hearing to get up and DANCE! Dance to the tune of your favorite song and capture it on video. Post the video on Twitter, Instagram, YouTube, or Vine and use the hashtag #UsherChallenge to be featured in our Live Feed (keep scrolling all the way down, please)!!  If you need help posting your video, go here to upload it on our website.  Post your videos NOW through World Sight Day (October 12, 2017) and always make sure to include the hashtag #UsherChallenge!

Need inspiration? Check out these two videos, Monkey's #UsherChallenge + #UsherChallenge Compilation.


Giving is not just about making a donation. It is about making a difference.

- Kathy Calvin

2. Donate + Fundraise

Donate or raise funds on behalf of our #UsherChallenge campaign. Head on over to our donation page to make a donation. ALL donations* will go directly to WIVR Usher Challenge and ALL donations will be matched (until the $6 million goal is met)!

*All gifts are tax deductible. The University of Iowa Foundation is a 501(c)(3) tax-exempt organization, and the preferred channel for all private contributions that benefit the Stephen A. Wynn Institute for Vision Research (WIVR). Funds raised through the #UsherChallenge will go directly to the laboratories pursuing the cures for all forms of Usher Syndrome. WIVR has a three-decade track record of success in the field of retinal genetics.

The more we spread the word, the further it will go and more it will change!

- Jane Goodall

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3. Spread The Word

Spread the word by challenging your family members, friends, co-workers, local sports teams, or even your local businesses to make their own videos or contribute to the cause. Use our Share buttons below or craft your own message on your social media accounts.


It's getting hot in here!!

- Nelly

What's Our Temperature?

32% Funded
$1.9M Raised

"Funds raised through the WIVR Usher Challenge will go directly to the laboratories and clinics pursuing the cures for Usher Syndrome,” said Edwin Stone, director of the Wynn Institute.  “We envision a day in the not-too-distant future in which a gene therapy for any inherited eye disease can be manufactured and evaluated in an academic clinical trial for less than $15,000 per person."  This WIVR Usher Challenge had raised $1.9 million as of August 31st. We wanted to start our own Usher Challenge to raise the additional $2.1 million, which will be matched for a total of $6 million.  We are 32% there.  With your help, the sun will always shine for those with retinitis pigmentosa!


We're operating in a world where one good video can lead to a massive social following.

- Mike Henry