+ NO SIGHT
WHAT WOULD YOU DO?
More than 400,000 people worldwide have Usher Syndrome, a genetic condition that robs them of their vision and hearing.
Let's change that.
Alone we can do so little; together we can do so much.
For more information on Usher Syndrome and its two conditions,
hearing loss and retinitis pigmentosa, click here:
We are starting a Dance Revolution ... because you don't need vision or hearing to dance. Help raise awareness and funds for Usher Syndrome research.
Help Us By Joining The Virtual Party!!
Keep scrolling below for the three ways you can help us make a difference.
Nobody cares if you can't dance well. Just get up and dance.
- Dave Barry
1. Make An
Be yourself! You don't need to have sight or hearing to get up and DANCE! Dance to the tune of your favorite song and capture it on video. Post the video on Twitter, Instagram, YouTube, or Vine and use the hashtag #UsherChallenge to be featured in our Live Feed (keep scrolling all the way down, please)!! If you need help posting your video, go here to upload it on our website.
Are you a Girl Scout looking to make a difference?
Click the trefoil to find out more!
Giving is not just about making a donation. It is about making a difference.
- Kathy Calvin
2. Donate + Fundraise
Please donate or raise funds on behalf of our #UsherChallenge campaign. Head on over to our donation page to make a donation. ALL donations* will go directly research unless you indicate otherwise. 100% of your donations will be donated directly to research or awareness (based on your choosing). That is right, 100%! We are currently donating to the Institute for Vision Research at the University of Iowa and they are matching donations until 12/31/2020.
The more we spread the word, the further it will go and more it will change!
- Jane Goodall
It's getting hot in here!!
What's Our Temperature?
Funds raised through the #UsherChallenge will directly to research unless otherwise requested. The Usher Syndrome Society is focused on research for all three types of Usher Syndrome and awareness to ensure the world is aware of this rare, genetic condition.
With your help, the sun will always shine for those with Usher Syndrome!
We're operating in a world where one good video can lead to a massive social following.
- Mike Henry